HOST YOUR OWN FUNDRAISER

Join our fundraising efforts by hosting your own fundraising campaign through our partner website, Zeffy!

By starting a fundraising campaign in your local community or workplace to rally support and raise funds, you help bring awareness to this rare disease and the urgent need for research in this field. Your donation can pave the way for groundbreaking research initiatives and innovative therapies & treatments that have the potential to transform lives.

Interested in hosting a fundraising campaign of your own?

Sign up below!