Born Fierce.
Living Strong.
Börjeson-Forssman-Lehmann Syndrome Nonprofit
Imagine receiving a diagnosis with little to no research.
That’s what has happened to all of us thus far. But we are here to change that.
Our Mission & Goals
Mom on a mission to raise awareness and funds for the rare genetic disorder Börjeson-Forssman-Lehmann Syndrome, or BFLS.
Our goals:
gain exposure for this rare disorder
fund research to mitigate symptoms through gene therapy
provide assistance to BFLS families in need
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